A photo from open sources
A rare genetic disease has led to the fact that a fourteen-year-old Indian boy began to age eight times faster than his peers. Moreover, accelerated aging has made The boy is fantastically ugly. Many people meeting nihal for the first time, they involuntarily think that he came to us from another planet.
Local doctors are not able to stop the disease. All that im under the force – to make the child feel more comfortable and led relatively full for his age a life.
Nihal lives with his family in a village near Mumbai A teenager has a lean body, wrinkled limbs and disproportionately large skull. To the list of physiological A child’s deficiencies also include a complete absence of hair on the body. These are only part of the problems created by a disease called Gatchinson-Guildford syndrome, or progeria. Similar deviation is extremely rare. Progeria is considered an incurable disease. IN on average, its carriers live thirteen to fourteen years. Wherein the disease most often affects males than female.
A photo from open sources
The causes of Hatchinson-Guildford syndrome are still not fully clarified. Some experts believe it is to blame mutations in the genes responsible for coding important cellular proteins shell. Children with this disease are born completely normal. in appearance, however, the disease begins to manifest itself after a couple of years. The carriers of the syndrome are short and extremely low. body. So, the growth of Nihal is only one hundred and twenty centimeters, and weighs an unhappy teenager about twelve and a half kilograms. The young Indian had to leave school because bullying peers did not allow him to study normally.
Currently, Indian doctors are testing on Nihal various innovative drugs. Doctors try their best extend the patient’s life and make his condition less painful. They have already managed to restore flexibility to the joints of the child, and also help the boy recover two kilograms. Specialists note that the brain and consciousness of the patient is quite correspond to his fourteen years old, however, the body of Nihal like a ninety year old man.
A photo from open sources
Relatives of the boy note his soft nature and boundless love for others. The young man is well aware that that he will probably have to leave this world soon, so he decided to make a list of his last wishes. In particular, Nihal I would like to get some modern electronic toys, as well as visit the famous American Disneyland amusement park.
A life
