A photo from open sources
A girl who did not feel pain was in the kitchen and mixed the noodles. At that moment, the spoon slipped out of her hands and hit the pot of boiling water. The girl then went to school during the second shift, the television worked in the living room, and her mother was folding pastel linen on the couch.
A photo from open sources
Without hesitation, Ashlyn Blocker lowered her right hand in water in order to get a spoon, pulled it out of the water and began to look at her in the light of the stove. Then she went to the sink and sent a stream of cold water to all the slightly faded white scars, and then she shouted to her mother: “I just dropped my fingers there!” Her mom, Tara Blocker left her underwear and rushed to daughters. “My God!” She exclaimed, after 13 years the same fear – after which she took a few pieces of ice and carefully put them to her daughter’s hand, a little reassured by the fact that the wounds turned out to be not so scary. “I showed her how with the help of others items in the kitchen you can pull a spoon out of the pan, “said Tara, when she told me this with a tired smile on her face a story two months later. “But there is another problem,” admitted Tara. – She began to use hair tongs, and they very strongly heat up. “Tara was sitting on a sofa in a T-shirt with the inscription” Camp I live without pain, but with hope “(Camp Painless But Hopeful). Ashlyn settled on the carpet in the living room and was engaged in knitting handbags from skeins of yarn accumulated in her room. Her 10 year old sister Tristen slept in a leather chair in her father’s arms John Blocker, who sat in it after work and gradually fell asleep too. The house smelled of homemade pasta and cheese cooked for dinner. Heavy rain in South Georgia drummed down the drainpipes, and lightning from time to time illuminated a baseball training ground, as well as a pool during the courtyard of the house. Without taking your eyes off your knitting hooks, Ashlyn entered the conversation and added one detail to the story of his mother. “I just then thought about what I did? “. Photos from open sources I spent more than six days in the family Blockers, and I saw that Ashlyn behaves like a regular 13 year old girl – combing her hair, dancing and jumping on her bed. I also watched her rushing about like crazy around the house, without thinking about their body, and her parents ask her to stop. She also fought in air hockey with her sister, and at the same time struggling hit the puck on the table, trying to do it as quickly as possible. When she cooked sandwiches in a pan, she touched the bread with her hands, as her mother taught: she had to make sure that the bread was already cooled enough, and you can eat it. She can feel warm and cold, but this does not apply to more extreme temperatures, at which normal people feel pain and immediately withdraw their hands. Tara and John did not feel completely calm when they left Ashlyn alone in the kitchen, but it had to be done – this was a concession to her growing independence. They made for themselves the rule of telling stories about how responsible she is girl, however, each of them was followed by an accompanying a story that wasn’t easy to listen to. Once Ashley burned her palms when she was two years old. John used a sink with high pressure on the driveway and left the engine running; and the moment they lost sight of Ashlyn, she went to apparatus and put his hands in the muffler. When they lifted them, skin was burned. There was also a story about fire ants attacking on her in the backyard and who managed to bite her more than a hundred times, while while she looked at them and shouted: “Ants! Ants!” One once she broke her ankle, but after that she ran for two more days, until the parents understood that something was wrong. They told everything these stories are so calm, as if they were talking about the game Tristen in softball or about the technique of hitting their son Dereck when playing golf, however, it was obvious that after all these long years they continue to think about how to protect the life of their daughter. Through a couple of days after the story of putting your hand in boiling water, Eshchlin sat in the kitchen and played with a bandage on his head, with which she threw back her long dark blond hair. We were all busy painting napkins, playing checkers and listening to Ashlyn and Tristen sang the song “Call me maybe”, but suddenly Tara cried out and lifted her daughter’s hair up. Ashlyn’s head dripping blood. Her blindfold stuck into her skin throughout time when we were sitting there. Ashlyn wears a bandage almost all the time. on the head and slippers, as well as the glasses prescribed by her doctor in dark frame, and also bead bracelets, which she stores in the old Vlasic cucumber jar. She sells her knitted handbags. five dollars to friends at Pierce County High School Middle School). When she laughs or smiles, you can see Invisalign transparent mouthguard, as metal brackets can hurt her tongue or gums, but she won’t notice it. She has also a medical identification tag that she attaches to a silicone bracelet matching its color clothes. On its back there is an inscription: “Does not feel pain – sweating is minimal. “At school she was once asked, not is she a superman? Will she feel pain if someone hit her in the face? Can she walk on hot coals like ordinary grass? Will it hurt if she gets stabbed in the hand? The answers are: no, no, yes, no. She is able to feel pressure and texture. She feels a hug and a handshake. She is everything felt when her friend Katie was painting her toenails. “People they don’t understand me! she exclaimed once when we played Checkers on her iPad tablet. – all the guys in the class me about it they ask, and I say: “I feel pressure, but I do not feel pain.” Pain! I do not feel it! I have to constantly explain this to them. ” When Ashlyn was born, she did not scream. She let out a barely audible the sound, and her eyes on the red face carefully watched happening. After birth, she had such a terrible the annoyance that Tara even frowned while bathing her, and then the pediatricians advised her to change the prescription, apply the ointment to the inflamed patches and keep them dry. “But I kept thinking that she Don’t cry, ”Tara said. – Doctors rejected these doubts, but we continued to ask the question: What is happening? “When Ashlyn was three months blockers moved from northern virginia to patterson, state Georgia, where the Tara family lived. When Ashlyn was six months old her swelling and reddened her left eye. Doctors suspected acute conjunctivitis, however Ashlyn did not respond to medication, and then the blockers turned to an ophthalmologist who discovered an extensive corneal damage. The ophthalmologist suggested that the girl there is no sensitivity of the cornea and sent them to the nursery Nemrous Children’s Clinic in Jacksonville, Florida. It took some time to agree on but before they left for Jacksonville, Ashlyn combed her nose and almost chewed part of her tongue with her teeth cutting through hers. IN at the clinic, doctors took a blood sample from Ashlyn, scanned it brain and spine however these tests did not give any certain results. Over the next 18 months were additional studies conducted. Back nerve biopsy the sides of her legs left scars that diverged while running. When the doctor finally informed her of the diagnosis, Tara was afraid that she forget all these words and therefore asked them to write down. The doctor got business card and wrote on the flip side: “Congenital insensitive to pain. “The doctor told us that we are here alone such, said Tara. “And that is a very rare case.” He said us, so that we closely monitor her and that doctors do not know so much about this disorder and therefore they are nothing special to help can not. It sounded like he said, “Well, I wish good luck! “At home, Tara introduced the words” innate insensitivity to pain “in the search engine and began to get acquainted with the materials. They turned out not so much, and they mostly talked about injuries and early of death. There were no comforting recommendations. “Neither John nor “I never heard anything about such things,” she said. – It it was unbelievable. And it was scary. “They got help from people in Patterson, a municipal settlement with less than 700 inhabitants. When Ashlyn started going to school, teachers watched her in school yard; one person was specifically assigned to monitor so that everything was okay with her all the time. The nurse washed her eyes and checked her shoes every time she came to school after vacation. She called it Pit Stop at Car Racing. Nascar “and made sure that there was no sand in the eyes that could to damage the cornea. She also checked the scars on her legs. “It sharpened our ability to observe, ”Tara said. – I learned see some things before they happen. “Blockers got rid of furniture with sharp corners. They laid on the floor very soft carpets. They did not allow Ashlyn to roller skate. They wrapped her hands with gauze in several layers so that she I could not comb them. They used a special baby monitor in her room in order to hear the sound made by the teeth when chewing. But, nevertheless, they could not sleep, they transferred her to her bed, and Tara held Ashlyn’s hands so that she wouldn’t could bite her skin or rub her eyes. When my daughter turned five years, blockers decided that the only way to find in the world a person like Ashlyn is making himself felt. They set contact with the local newspaper The Blackshear Times, and in October 2004 years, an article about Ashlyn was published in it. Agency Associated Press also distributed this article, and Tara remembers how after Ashlyn’s photo was on the MSN homepage next to the images of George W. Bush and John Kerry. Ashlyn’s Granny Virginia saw this photo at work and called Tara at To Georgia. “Have you seen Ashlyn on the World Wide Web?” She asked. “A girl who does not feel pain!” Turn on your computer! “To this time, of course, the Blockers already knew everything. “They already got a call from Good Morning America. Family Blockers sent by plane to New York, where they became guests Good Morning America, Today Show, and “Inside Edition”. They always told the story of how Ashlyn she inflicted wounds on herself. When they flew back to Jacksonville, people already began to recognize them at the airport. They interviewed them specially arrived group of the French news channel, and also correspondents for the BBC television company. Japanese reporters TV channels gave them bamboo chopsticks. They also TV hostess Oprah called, but they never got into her program hit. They also agreed to a proposal from Heraldo Rivera (Geraldo Rivera), and refused Maury Povich (Maury Povich). 24 January 2005, Ashlyn appeared on the cover of a famous magazine People with Brad Pete and Jennifer Aniston (Gennifer Aniston) under a large yellow headline: “Brad and Jen: why they split up.” All this attention from the media allowed in ultimately the Blocker family make contact with scientists, able to help them understand their daughter’s condition. Dr. Roland Staud (Roland Staud), professor of medicine and rheumatologist from Florida State University, heard of Ashlyn and invited Blockers to Gainesvill, where he had spent 15 years research on chronic pain. Consequences of the condition Ashlyn was very serious. It is a natural an anomaly. Over the next few years, Dr. Stoud tested Ashley’s genetic material and eventually discovered two mutations in its SCN9A gene. It is this gene that mutates a particular thus leads to very strong painful sensations, as well as the appearance of a chronic pain syndrome. Stoud reasoned like this: if he can understand how this happens mutation, then he will be able to correct this defect in people suffering from chronic pain. Relationship between this gene and the intensity of pain was discovered in 2006 by English a geneticist named Geoffrey Woods in Cambridge, England. “I used to work in Yorkshire, where many immigrated Pakistanis “and where there were many marriages between cousins and second cousins brothers and sisters, Woods said when we talked with him about in this case. “I saw a huge number of children with genetic diseases, “he added. An obstetrician who came to England for courses, convinced Woods to go to Pakistan and do his research there. During one of his trips, he was asked to see the boy in Lahore, who was said to feel no pain. “I agreed, and we went to him, “said Woods. They were met by his mother and father, who said the boy died. “On his birthday, he wanted do something special for my friends and decided to jump from the roof the second floor of his house, ”Woods told me. – And he did it. Then he rose from the ground and said that he was okay, but on the next day died of hemorrhage. I realized that pain has a different value than I previously thought. The boy did not have pain sensations that can limit its actions. When I returned to England, I found three more families whose children were in the same condition – they had numerous injuries, bitten lips, bitten tongue, bitten hands, fractures and scars. And in some In some cases, their parents were almost taken away from their children, because suspected of mistreating them. “Woods and his colleagues began to research those genes that cause this disorder, and eventually came to the SCN9A gene. Capable perceive pain nerves on the surface of the body usually react at that moment when we touch hot or sharp, after which they send electrical signals to the brain forcing us to react. These electrical signals are generated by molecular channels generated by the SCN9A gene, says Stephen Wexman (Stephen G. Waxman), professor of neurology medical Yale University Faculty. Ashlyn’s mutations have not allowed the gene to create these channels and therefore electrical impulses do not arise at all. “This is an unusual disorder,” stressed Woods. – Boys die at an early age because of their more risky behavior. It is very interesting and allows you to understand. following: pain exists for several reasons, and one of them is to make a person use his body right, without harming him, and also gives the opportunity control what you do. “When I visited Roland’s office Staud in September this year, at first he did not show much desire to speak. When I described to him a week spent with Ashlyn, he began to talk about her as if it was his own child. On a bulletin board at his desk her picture hung. He watched her when she let paper doves in the lobby of the clinic after many days devoted to tests, and every year he posed for a photo along with her family. He watched her grow up. “Her life story provides a striking snapshot of how life can be complicated, devoid of guidance from the pain – noted Staud. “Pain is a gift, but it is devoid of it.” When Ashlyn was nine years old, Staud asked John and Tara for permission to conducting a series of medical tests to determine which Ashlyn has a sensitivity level. She recognizes tickling and may feel a pinplug, however it is not capable capture extreme temperature levels. He also spent with her a series of psychological tests and tried to figure out whether she the ability to feel emotional pain and sympathy, and came to the conclusion that Ashlyn is a very gifted and friendly girl. Staud asked himself what would happen to Ashlyn as a teenager, if she stopped obeying her parents and how it would affect her health. “We know very little about this phenomenon in the long run, he said. – What was it like would her emotional state? How would it develop? “We sometimes experiencing emotional pain physically – Staud cited the traditional an example of sensations of great sorrow and physical pain arising in a moment of breaking love affairs – and he was trying to understand whether the relationship between the body and emotions go in the opposite direction. is he I asked myself a question whether a person will not feeling physical pain, to some extent a delay in development? “It’s possible that some of her pain are present, ”said Staud, speaking of Ashlyn. – This is one of reasons why we are monitoring her. Currently she is undergoing a period of hormonal changes. The period is coming puberty. Will she be scared of this? She is only threatened emotional consequences. She is a very calm girl, and her parents learned to influence her without resorting to means of physical contact. “Staud paused and then added: “I don’t think she often cries.”
A photo from open sources
But in fact, Ashlyn sometimes cries. She cried when in At the beginning of this year, her beloved dog was lost. After that ashlyn lay for a long time curled in a bed with her by parents. “She can empathize,” Tara told me. “She really capable of that. I don’t know if doctors could establish this in the course of their research. But I know that she can, I know it in my heart. “Heavy rain one night when I was visiting them, turned a reddish driveway in front of Blockers house in a real lake. John came home from work drenched to the skin, and took a bottle from the refrigerator Mountain Dew soft drink. He works in the telephone Alma, and often drives its truck on highway 84 past the flags track and field team Georgia Bulldogs, hanging by the houses, and also past several billboards on which patterson presented as “One of America’s 50 Best Cities for Education children. “In this city and its environs, it is known as “telephone man”, and often it is addressed to him in overtime, not the telephone company, and ask John to decide their problem. “Something happened to me the other day, – he said, having dried out a little. – I was at school, and suddenly some the man says to me: “Let me ask you a question. Maybe this it will be a little strange, I just want to use this as an example. You want to say that if she gathered, let’s say chop off your hand … “” Oh my god! “- exclaimed at this moment Tara. “Well, I kinda say, what a horror!” John continued. “And he says, ok, that is, you want to say that she wouldn’t felt? “Well, and I say:” She would have seen it and scared. ” Well, he says: “Yes, yes, but wouldn’t it hurt?” And I say: “No,” but he: “This is amazing.” Ashlyn sitting at the kitchen table, supporting her head with her hands, looked at us, smiled and said: “Why should I cut off my hand?” John and Tara heard Ashlyn screamed and said “Oh” when she witnessed how someone else got hurt. And Ashlyn did the same most, when her father told how he put a nail right in thumb during the construction of the chicken pen but she I didn’t understand why his face turned red, why he screamed and lifted his thumb up. She talked about that for many years carefully studied the reactions of other people and learned to shrink when someone described something painful. “Daughter, what happens in your head when you see that someone hurt yourself? “John asked her.” I feel sorry for them, “she answered. – Because they are in pain, and I am not. And I would like to help them. ” “Describe how you understand the pain,” John asked. “What does this mean for you? “” I don’t know. “” When you see someone else in pain, what do we associate it with? “” I think that it must be painful. “” And what does it mean painful? “Ashlyn squinted eyes, showing that she thought deeply. But she is so and could not answer this question. One Saturday morning at Ashlyn woke up in the afternoon last year – she loves for a long time to sleep. Then she went into the living room and said to her mother: “I had a dream. “Tara thought Ashlyn was going to tell her some fantastic story, but instead she said: “In a dream, I set up a camp for children like me.” She said, that in a dream she saw a lake and boats, and still very vividly imagined children running there, whom she did not know before. Exactly so the idea of organizing Camps Without Pain, but with Hope (Camp Painless But Hopeful). Tara called a camp called Camp Twin Lakes in Winder, Georgia, Four Hours drive from Patterson, and asked them about the possibility of a weekend for children who do not feel pain. The camp leadership has given its consent. Tara will act as the coordinator and pay lodging, insurance and meals, and camp administration will take care of cooking. Blockers prepared jerseys and stuck stickers on their cars. Local radio station provided them with free time for fundraising announcements during barbecue time at the pharmacy parking lot Rite-Aid in Blackshear. Ashlyn sold there to her friends several purses and jewelry made by her. Tara placed an advertisement for this camp on a special page in social network Facebook called “The Gift of Pain”, organized by support group for families in which children are deprived of sensitivity to pain. “Anyone interested in visiting the camp for such families like ours? ”Eight families gave their consent. The camp was organized in early November when the weather in Georgia is getting cooler and the temperature is more favorable for children, which can hardly sweat. Specialists have identified three genes, associated with congenital insensitivity to pain and they suspect that there are still genes of this kind that are not yet managed to find. Some of the children who came to the camp a mutation of the NTRK1 gene, which is associated with the development and maturation of the nervous system and which, in addition to insensitivity to pain, causes mental retardation, frequent colds diseases, as well as a tendency to self-mutilation. 11 year old Roberto Salazar from Indianapolis, who arrived in camp with his mother, it was just such a mutation, and for a short period of his life, he already managed to bite off part of his tongue, pull out your teeth and mutilate your ankles with your own weight. Once he jumped a flight of stairs. A large he is forced to spend part of the year at home in an air-conditioned room, because he doesn’t sweat at all, and his body temperature is capable of change very quickly, which is very dangerous. Mom Roberto Susan saw Ashlyn’s name in an article several years before and contacted Tara. Since then, they have been in contact, sharing stories, occurring with their children. Roberto arrived at the camp on a scooter. is he rolled other children on it, giving them pleasure. Browns family from Mapleton, Iowa, arrived at the camp by truck in nine people, and among them was also a three-year-old child named Isaac. When Isaac was very young, he lowered whole palm in your mom’s hot coffee cup without cried. And he put his hands on a hot stove, and received third degree burn, but did not cry. Parents took him to a neurologist who recommended genetic tests, however, the boy’s family could not afford it. But after as he cut off his eyelashes with scissors for nails on his legs, his mother Carrie told her husband: “I can’t stand it anymore.” In 2010 they took their son to Mayo Clinic in Rochester, Minnesota. Doctors told Carrie that they believed her son had congenital insensitivity to pain, but they need to find the one the gene in which the mutation occurred. They included Isaac in their research, and the long process of seeking explanations has begun, but for now, according to Carrie, it has not yet been found. Carrie Brown found Tara with using the internet and they came to the conclusion that they should not be missed such an interesting opportunity to spend some time with others parents who share with them this frightening experience of living with children who are unintentionally injured. In family Browns have seven children, and they live on the salary of a husband who is a registered nurse. However they decided in any case to go to Georgia, even if it means that they are because of this will not be able to pay other bills. Church as a gift provided them $ 400, and with this money the Browns family was able to finance your trip. They were on the road for 18 hours and stayed overnight at Motel 6 in Chattanooga, Tennessee, where they tried unsuccessfully to obtain permission from a hotel employee all nine members of their family stay in one room. Browns The first to be in the camp. When the Blockers arrived, Tara left cars and hugged Carrie, who was standing next to her truck. They both cried. “I just … I don’t know how to explain it, – said Carrie. – It seemed to me that I finally met another mom who understands me, who will not blame me for excessive caution because she knows how important this is. She understood that. “The first night at camp Ashlyn cooked a number of traditional desserts – smors (s’mores), and then took a truck ride with hay along with others children. She watched the puppet show. She also She appeared on a hanging rope. She danced. Her especially attracted little girls. She held them and gently stroked them over back. She helped them decorate the stones for the passage, including beads – these were small concrete blocks that will now be constantly stay at this place in memory of what was going on there camp. “It was just great to see kids like me,” Ashlyn said. Karen Cann had a lot miraculous, but there was also a lot of pain, although she never felt it. When she and her sister Ruth were children and lived in Scotland, no one could explain what was happening to them. Like Blockers, their parents lived in fear – they were afraid of what the girls might do to themselves any harm, and they, instead of looking for oneself people preferred not to stand out. “We didn’t want us considered abnormal, “35-year-old Cann told me and then added: “But I think we are crazy.” Neither Karen nor her sister almost can’t sweat and they lack the ability to smell. (Ashlyn’s parents also found that their daughter did not smells when she began to use perfume immoderately, spraying them from a bottle. Then it turned out that she just was nice to feel this light cloud). Over time they burns and scars constantly appeared, and their limbs were often found themselves in a cast, and their mother doctors asked partial questions. “We did not even know what was happening to us and what to call it,” – said cann. Only after she turned 20, she began to seriously look for answers to these questions. “I wanted to direct emails to doctors and try this way get an answer to these questions. They showed me and my sister Ruth to a doctor at the Liverpool Institute, where pain is studied. And I also sent a letter to the Addenbrooke Clinic. And then this letter was handed over to Dr. Woods. “Karen Cann was 29 years old, when Woods first met these sisters. “We just laid out everything that happened to us, she told them about their first meeting. – It was like a psychological consultation. Poor Dr. Woods! “They wanted to find out why they can’t to smell. When they grew, they were not sure whether they can smell or not, as the taste sensations in they were not lost. He blindfolded them and brought them to their noses. orange and coffee. No reaction. He performed a blood test and soon informed them of a mutation in their SCN9A gene. “People consider us hysterical or strange if you tell them that you don’t feel pain – Woods told us. – Perhaps you don’t really want people to talk about it. they knew. We found families reluctant to talk about it. diagnosed to other people and prefer to keep it secret. “Therefore Woods suggested that such cases are not as rare as is customary. count. “I think there are more than one in a billion,” said he – or even a million. Adults with a similar disorder often go unnoticed because they hide it. “When In 2009, Tara met Canne on the Internet, she sent her email and told her how happy she is find someone she can talk to, someone who is capable Be an example for Ashlyn. Tara also wanted to know more. how evolving life cann? Does it feel hot or cold? Does she sweat? Tara also knew that Cannes had a husband and a child. what does it mean to be a mother and not feel pain? “In response, I sent her a rather long email, so how I wanted to reassure her and tell her that this feature was not an obstacle in the life of my sister and me, ”said Cann. – I knew that Ashlyn was still very young, and it was clear to me that in front of Tara is a difficult time. “When Cann was as old as Ashlyn, she began puberty and became interested boys. She also remembers that she was troubled by scars and therefore she hid her legs under long dresses. She was very shy its features. She remembers touching the hands of others. girls and felt how soft and graceful they are in comparison with her their own, which were rude and scarred. But then she became easier, she said to Tara, and she and her sister graduated from high school, and then successfully studied at the university. Each of them had loving partners, great friends and normal work. When she making love with her husband, she felt pleasure or, at least she thought she could experience it. “Intimate the relationship is very pleasant, ”she told me. – Perhaps mine the sensations are slightly different, but still it’s nice. “She learned to live with her own characteristics, she said, and became to understand what things can hurt her – this process continued almost all her life. However a deeper understanding of the existing The problems allowed her to cope with the role of an adult. Cann gave birth to her first child at 31 using cesarean section. The born girl was healthy, but after that, Cann felt a numbness on the right side. She’s back home and carefully monitored her condition for several weeks, but the numbness became more noticeable – although she was not painful. This went on until she did not hear any crunch inside her body and became have difficulty walking. She went to the doctor and explained to her that she did not feel pain, but she was sure that something was wrong with her and asked for an x-ray. The doctor said, that she probably has postpartum depression and needs to go through appropriate course of treatment. But she insisted, and in it eventually turned out that she had been damaged during childbirth pelvis and opened internal bleeding. Next six months she spent in the hospital and could not walk at all. As a result of the pelvis was healed so that one leg was shorter than the other, and she forced to wear special shoes in order to compensate this flaw. However, in addition to this, there were no long disorders, and in 2011, Cann gave birth to a second child – at this time of a son – and also with the help of a caesarean section. This time x-ray was made immediately after birth, and everything went fine. Tara continues to correspond with Cannes. “She gives me the opportunity to understand what Ashlyn expects in the future on her life journey, said Tara. – If something happens that I don’t understand, I know that I I can contact her and ask if something happened to her like that. “Before Canne met Tara and found out about Ashlyn, she did not like to tell people about her features. “She me inspired, ”said Cannes. – My sister and I examined our negative feature – probably it was connected with physical harm, as well as emotional pain and stress experienced by our family. But now I decided that it is time to get something positive out of it. I want to people found out more about this. It also inspires me even more. the possibility that doctors used me as a test subject rabbit for further study of the phenomenon of pain, as well as for developing drugs that can be created through study features of my body. “Despite all the support in social network Facebook, despite sharing photos and feelings the fact that Cann and Ashlyn are interconnected by the experience of their life, – in spite of all this, Cann never met with the Blockers and never talked to them on the phone. When I asked her why she doesn’t do this, she said: “I think I would do this, if not for what I had a chance to survive a few years ago. ” She was referring to the despair that arose after her damage to the pelvis. At that moment, she realized that inability to feel her own pain meant that she could not only endanger itself, but may not be in able to take full care of your child. “IN emotionally, I’m still very weak and I would not want to upset during a telephone conversation and thereby frighten Tara regarding Ashlyn’s future, ”she said. – Not in the sense that the same thing could happen to her. But parents show anxiety, right? “Sometimes it seemed as if the whole city Patterson is a kind of network with external receptors of pain and awareness of the danger that can expose yourself to a girl who does not feel pain. “Once she I cut my leg, ”said Michael Carter, her music teacher at Pierce County High School. – I do not I know, maybe then a music stand fell on her, but in any case on her leg began to bleed. “One could feel in conversation with many people in Patterson that Ashlyn occupied a strange and a special place in their life that they were proud of her and worried about her. “High school can be traumatic for some children, – said Carter. – but it seems to me that somehow Deal with it. She says, “Here I am.” She can tell you about it. She loves to cuddle – she is very cheerful man. “Her art teacher Jane Callahan (Jane Callahen) talked about her imagination, that she sees things a little differently. She is well aware of the details. And her cool Head Corey Lesseig explained how important for her to live in a city like Patterson, where everyone knows her and understand, and she can feel comfortable staying herself by myself. And he said: “I ask myself what will happen to her when will she grow up? “Watching how she puts on her backpack, how she walks down the hall watching her on weekdays during football match, painting lessons or rehearsal of the group in which she plays the clarinet, I realized that it’s difficult to think of her as representative of a handful of people on earth whose bodies contain a secret that can help solve a riddle related to feeling pain in a person. As Stoud said during our meeting in Gainesville, they only slightly scratched the surface layer what you can learn from Ashlyn. Most likely, they will still study it. for many years, and she, as well as her parents, are already used to this, to ongoing tests and to the realization that she, like Karen Canne will never possess the ability to fully self protect. Every day she was able to better understand the environment. the world and she knows better what awaits her and what she should get ready. After that, many things became simpler for her, and the possibilities in her life have expanded. However one cannot imagine all the dangers in advance, and therefore she needs the help of all the people around her in order to manifest now necessary caution. “She’s normal,” her mother said. “ People say, “I don’t know how you deal with this? Aren’t you need to protect it? “Well, we reply:” I don’t know, come to us and tell us if we need to do anything else. ”
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